Archives for September, 2014

TEDMED: What you see is what you get

After having time to reflect on everything I saw and learned at TEDMED 2014, I keep coming back to an idea that was planted in my brain during the conference: Your personal perspective is going to shape what you take away from TEDMED.

photoMaybe that seems obvious. I’d certainly be curious to hear what other delegates think. But in the work I do around healthcare, my primary focus is people — helping them be more engaged in their own care through education and activism. And the theme that kept resonating for me at TEDMED, over and over, was humanity.

Of course, I was impressed by the high-tech solutions and innovations I learned about. When it comes to enhancing the healthcare experience for people, the possibilities are limitless. But technology will only get you so far. True innovation still requires a human touch — improving the way physicians and patients interact with each other, finding strategies that truly center care around patients and their loved ones.

I was constantly reminded of how exploring our own humanity can open the doors of possibility and improve the way we approach healthcare.

There was Danielle Ofri, an attending physician at Bellevue Hospital, who bravely shared her personal story of unintentionally endangering a patient’s life as a way to underscore the vital importance of reducing preventable medical errors. The way to do that, she said, is to create an environment where physicians are encouraged to admit their vulnerability and humility, to say “I don’t know.” Because if care providers never admit their uncertainty or their mistakes, how can the profession ever develop ways to reduce those errors?

Elizabeth Nabel, the President of Brigham and Women’s Hospital, talked about humility, too, and emphasizing the need to ask “What if?” and admit what we don’t know in order to drive change and improvements in our healthcare system.

Not everyone on the TEDMED stage was a healthcare professional. One of the talks that resonated with me the most was 16-year-old Rosie King, who spoke about her own autism and how she sees it as an opportunity to lead an imaginative life instead of one in which she is identified by a label. She reminded us that we must put the person first.

photo 3Time and time again, speakers underscored the vital need to recognize the humanity in healthcare — as did the people I spoke with between sessions, like Mark Hyman, who advocates personalized care through Functional Medicine.

Kitra Cahana, a photographer who documented her father’s determination to regain his abilities after a debilitating stroke, a powerful testament to the strength of the human spirit.

Elizabeth Kenny, who shared her horrifying personal experience with anti-depressants, which made her much sicker than any disease did. “This talk is only 12 minutes long,” she said. “Most patients don’t get to spend 12 minutes with their primary care physician.”

Leana Wen, an emergency medicine physician whose “Who’s My Doctor” initiative is encouraging complete transparency from doctors so patients can make informed decisions about who will be caring for them. Her idea of radical transparency isn’t exactly popular with some doctors, but it puts the power of decision-making in patients’ hands.

Julian Treasure, Mariana Figueiro and Robin Guenther, who spoke about the impact of sound, light and environment on the patient experience and, in particular, healing. It’s been said that hospitals are the worst place to get rest and recover, because of all the noise and light, not to mention the toxic materials and chemicals that are still used too often. These experts are working to create care environments that promote better health.

There was so much more, and you can read some of my initial thoughts in a Storify I created right after the conference.

But on reflection, my initial gut response to TEDMED 2014 has proven correct.

Because TEDMED is all about sparking our imaginations and drawing conclusions that lead to new ideas, I can’t help thinking about a production of Stephen Sondheim and James Lapine’s Sunday in the Park with George that I saw a few days after TEDMED.

SundayThis imagined story behind Georges Seurat’s painting, “A Sunday Afternoon on the Island of La Grande Jatte,” is all about connecting the dots, about finding the humanity in whatever passion drives us, about not being so caught up in the work that we forget to experience life all around us.

Our work is a collection of everything we’ve experienced — of everything that matters to us at the human level. I know that my TEDMED 2014 experience was shaped by the issues that matter most to me.

Although there’s a lot we don’t know about Georges Seurat, there’s no question he saw the world in a singular, innovative way.

We all have the power to shape the world with our own unique view. So as I move forward from TEDMED, I’m left with a new appreciation for the closing line of Sunday in the Park with George, written to describe Seurat:

“White. A blank page or canvas. His favorite. So many possibilities.”


[Photo credits, top to bottom: TEDMED theatre entrance in DC by Amy Lynn Smith; selfie with Dr. Mark Hyman; Seurat painting photo by Plum Leaves via Flickr.]

Stories that can change minds

There’s no question that storytelling has the power to shape our thinking in ways other media just can’t. Stories about the human experience are compelling because the one thing we all have in common is our humanity, no matter how many ways our views may differ.

NN-AS_highresUsing storytelling to influence and inform is central to the work I do as a communicator, and at the 2014 Netroots Nation conference I had the pleasure of speaking during the closing keynote session about how success stories can change the conversation regarding the Affordable Care Act (ACA).

There’s been a lot of miscommunication and confusion around healthcare reform, and it’s understandable that some people may be apprehensive about this major shift in the way America’s health system works.

But the fact is this: People’s lives are being changed by having improved access to health insurance and healthcare services. In some cases, lives are being saved.

I’m one of the ACA success stories, and at Netroots Nation I shared my story and those of others in an Ignite talk. The Ignite format is very specific. You have five minutes to make your case, accompanied by 20 slides that advance automatically every 15 seconds. It’s an exhilarating, high-energy format, and my experience onstage could not have been more fun.

Watch the video yourself to hear what I had to say — and see how storytelling can change minds.

[Photo by Anne C. Savage.]

TEDMED 2014, now processing…

If the mark of a great conference is coming away with a brain so full you think it might explode with imagination, then TEDMED 2014 achieved greatness.

TEDMEDbadgepicIt’s days later, and I’m still processing everything I heard from the stage and learned from my fellow delegates in offstage conversations. I’m more than a little relieved to know that others who were there feel the same way. One person wrote me in an email, “I’m still mentally tired/processing things.”

I couldn’t have said it better myself.

Certainly, during the three-day conference I recognized some major themes that resonated, at least for me. I suspect every delegate came away with different impressions based on the emphasis of their work and their personal viewpoints. But we have one thing in common: We were all there because we care deeply about shaping the future of health and medicine. And the inspiration we absorbed will fuel our work for months, if not years, to come.

While the ideas for my blog post simmer, I put together a Storify of tweets shared live at the event, to collect my thoughts and pass them on to others. They’re the ideas that stood out for me, by tickling my brain, touching my heart — or both.

If you were at TEDMED, I’d love to hear what you found most inspiring or meaningful. Share your thoughts in the comments and I may include them in an upcoming post.

Let’s keep the imaginative conversation going.

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